My first six weeks of chemo & radiation came & passed by much quicker than I had anticipated &, ready-or-not, I found myself face-to-face with August 19, 2010. 2 days after surgery I had my first look at my stoma (the opening made on my lower-left abdomen) in the ICU when my Ostomy Nurse, Robin, came to talk all things "Colostomy 101" with Chad & myself. It was very-much sensory & informational overload with words I couldn't pronounce & never-ending options as far as the stoma could see. I somehow managed to keep my composure until Robin left the room & then instantly let my guard fall. It was like someone cued the waterworks & I was ever-ready to hit the mark; I cried heavy tears: tears of anger & fear, tears of uncertainty & nervousness. I cried for the "me" that existed before cancer, before tumors, & before colostomies. I cried so deeply for the 26-year-old who wanted so badly just to live a normal life. Then, something clicked - Dr. B's words replayed in my head: "you will have this for the rest of your life BUT this will give you the rest of your life". What was wrong with me??? I was still breathing & my heart was still beating. I was still alive. I quickly made the decision to allow myself to mourn the "old me" for 10 minutes. I could cry, be mad as hell, & hate the world for 10 minutes & believe me, I definitely did. On the very-eleventh minute, I wiped my eyes, took an extremely deep breath, looked down at my colostomy, & whispered: "thank you".
Life post-colostomy is so incredibly less dramatic than I had ever expected. Stella (yes, she most definitely has a name - she's my homegirl!) is only a small part my battle & I am thankful for her existence everyday. My colostomy allowed me to celebrated more birthday's, anniversary's, & Christmas's with the people I love so much. I'm able to wake-up next to my love every morning & say "sweet dreams" to my family every night. Life is beautiful & I can't wait to experience every tomorrow that comes my way.
(Photo courtesy of CNN.com) |
I understand how you felt. I felt the same way when I was told I needed to have a permanent colostomy bag because the cancer destroyed my sphincter muscles...but my dr. also told me that the bag would give me a good quality of life. He was so right! No more adult diapers for me...My ostomy has been the *butt* of many jokes...that rascal loves to *toot* at the most inopportune times. I call my bag my *whoopee* cushion. Ostomies are part of our new *normal* and its really a small price to pay for being well again. I see you took 5FU...me too. Did you lose your hair? Did it affect your nerves...numbness and tingling??
ReplyDelete"Enjoying the ride"..? In a way I do, because of the recognition, like commenter above. The feelings you write about were somewhat the same though I'm many times your age (a tiny bit exaggerated)live in a different country and my mother's tongue is a different one too.
ReplyDeleteI'm waiting to get a second stoma now.
All the best. You're doing great!
Josi